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CCDS Bulletin

Canadian Centre on Disability Studies -- Vol. 3 No. 3 Summer 1999


In this issue...

Annual General Meeting to Focus on Research

Does this culture have a Food?
Washington D.C. Conference raises palatable questions

Youth Employment Project
Consumer-centred, Participatory Action Research

Small Grants Program Announced

International Research
A Partnership Approach

CCDS Membership

A Unique Library
The Disability Information Network

Discovering Connections - Book Review

Staff Profile
Neil Okumura, CGA

Royal Bank works towards hiring targets

Editorial

New Date Set for CCDS Annual General Meeting

Employment Opportunity

Membership Renewal Time

Events Calendar


The CCDS Bulletin is a publication of the
Canadian Centre on Disability Studies.
It is published four times a year.
Your ideas and suggestions are welcome.
Contact the Editor, CCDS Bulletin,
2404-7 Evergreen Place,
Winnipeg, MB R3L 2T3
Phone: 204-287-8411
Fax: 204-284-5343
TTY: 204-475-6223
E-mail: ccds@disabilitystudies.ca
This publication also appears on the CCDS Website:
http://www.escape.ca/~ccds/
Unsolicited materials are not the responsibility of the Centre.

The Centre acknowledges the Contributions of:

Royal Bank of Canada
Human Resources Development Canada
Western Economic Diversification
Canadian International Development Agency
Province of Manitoba
Winnipeg Foundation
The Thomas Sill Foundation
Winnipeg Development Agreement
Many individual donors and volunteers

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Annual General Meeting to Focus on Research

Research accomplishments, issues and possibilities will be the focus of the 1999 Annual General Meeting of the Canadian Centre on Disability Studies Thursday, October 28, 1999, 7 PM at the Norwood Hotel, Winnipeg, Manitoba.

Research in progress and research results carried out by CCDS staff, students and research associates will be on display. Recent papers such as Taking Action on United Nations Disability Standards by Deborah Stienstra and Patrick Kellerman, Disability and Families by Karen Blackford and Understanding WHO Definitions: Key Issues for Social Policy by Henry Enns will also be available.

A panel on nationally known speakers will discuss participatory action in research at the AGM and also at a special Roundtable the following Friday morning at the Norwood Hotel.

Board members and staff of CCDS have presented their research activities in various places including a Halifax Disability Research Conference organised by the Social Sciences and Humanities Research Council (SSHRC), the CPA and St. Mary’s University in Halifax. CCDS is also participating in the August 1999 Symposium and University of Calgary Summer Program on Disability Studies and Research. During the past year CCDS also participated in the Disabled Peoples’ International conference in Mexico and the Roeher Institute’s August Disability Concepts Symposium.

Opportunities over the past year have allowed the CCDS Research Committee to partner and/or dialogue with many disability consumer organisations at the national and provincial level. A priority for the Committee in the coming year is to further foster those partnerships in locations across Canada.

Many projects are planned for the coming year. These include the recording and dissemination of historical contributions of people with disabilities to the advancement of human rights in Canada and internationally. Readers across the country who wish to participate in these or other research projects are invited to contact Dr. Karen Blackford, CCDS Royal Bank Research Chair.

A man with his arms raised addresses a small group of people
Research Seminar featuring Gary Annable

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Does this culture have a Food?
Washington D.C. Conference raises palatable questions

The annual Society for Disability Studies conference, held May 26-30, 1999 in Washington D.C., is the only forum of its kind to discuss research in disability studies and allows participants an excellent opportunity to debate the issues. So says Laurie Ringaert, Manager of the Canadian Institute for Barrier-Free Design, University of Manitoba. Ringaert, Vice-Chair and Executive Board member of the Canadian Centre on Disability Studies, attended the SDS conference on behalf of her institute and CCDS. Ringaert presented a paper and appeared before the Board of SDS during the five day conference which brought together academics, disability advocates and government representatives.

Ringaert’s presentation to the conference dealt with “Community Participation in the Development of a Degree in Disability Studies”. The role of the disability community, the academic community, the corporate sector and government agencies was described in detail. The paper describes the process being used as planners work toward the establishment of a Masters Degree in Disability Studies at the University of Manitoba. “The paper was well received and demonstrated again our uniqueness to others in the field”.

The SDS Board received a proposal and presentation from Ringaert to have a joint Disability Studies Conference in Winnipeg in 2001. According to Ringaert “...the proposal is under consideration”.

Ringaert made a few observations about the conference. “One of the interesting questions raised was, does disability have a culture? A video on the subject was shown and the interviewer asked in the video ‘If this is a culture, does it have a food?’ and the reply came as quickly from Harlan Hahn, ‘yeah, it’s fast food!’”. Ringaert noted that there were only a handful of Canadians at the conference. She also commented that many U.S. government representatives there were people with a disability (Judy Hueman, U.S. Department of Education, Susan Daniels, Employment Issues). “The conference provided good connections. I met with well known U.S. Disability Studies and disability activists Harlan Hahn, University of Southern California; David Pfeiffer, Hawaii; and Davna Krasnitz of the World Institute on Disability” Ringaert said.

Ringaert noted that she enjoyed and appreciated the opportunity to represent CCDS at this important conference.

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Youth Employment Project
Consumer-centred, Participatory Action Research

The Youth with Disabilities Employment Project, begun in April, 1999 by the Canadian Centre on Disability Studies, M. Jones Consulting and Skills of Learning Associates of Winnipeg, Manitoba has moved into the individualised work preparation phase. Ten young people participated in the first stage, in-class training, provided by project co-ordinator Moira Horgan-Jones; Patricia Flaws, employment counsellor and adult educator; Cassandra Jones, youth advocate; and David Kehler, CCDS Systems Technologist and funded by Human Resources Development Canada.

Dr. Karen Blackford, Royal Bank Research Chair, CCDS and Research Assistant Janalee Morris are covering issues related to research for the project in accordance with the CCDS mandate to provide both education and research from the perspective of people with disabilities. These issues include ethical rights and responsibilities such as privacy, informed consent, and freedom to agree to or refuse participation. Items for a questionnaire were jointly created with the project participants. Based on ideas from the group about what issues were important in their previous educational and volunteer experiences, and also in their present program, a draft questionnaire was developed to evaluate employment preparation programs.

A young man works at a computer
Graduate of the Youth Employment Project at work

The research portion of this project, funded by the Manitoba Ministry of Education Innovations and Research Division, is still in progress. To date, results include increased research skills in youth with disabilities, a working evaluation tool for employment program evaluation, and a demonstration of consumer-centred, participatory action research.

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Small Grants Program Announced

The Canadian Centre on Disability Studies Research Committee is pleased to announce a Small Grants Program to fund community-based disability-related research. The application deadline is November 30, 1999. A maximum grant of $5000.00 per proposal is available. Successful proposals will be announced March 1, 2000. Detailed application procedures are available by contacting the Research Director at CCDS. Address applications to:

Small Grants Program,
Canadian Centre on
Disability Studies,
2404-7 Evergreen Place,
Winnipeg, Manitoba R3L 2T3

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International Research
A Partnership Approach

More than a dozen persons assembled during the afternoon of June 17th, 1999 for the first symposium of international task forces and project groups working under the umbrella of the Canadian Centre on Disability Studies. The purpose of the meeting was to share information about international disability research and education efforts being carried out, how to co-ordinate these efforts and how to assist each other in order to utilize collected expertise and knowledge.

Dr. Olga Krassioukova, CCDS International Director, welcomed participants representing the Council of Canadians with Disabilities (CCD), the Independent Living Resource Centre (ILRC), Disabled Peoples’ International (DPI), the University of Manitoba (U of M), the Family Services Department of the Government of Manitoba and CCDS to an afternoon of discussion regarding the formation of a committee that would serve to connect the groups and assist them in developing common strategies to enhance participation of disabled persons in international projects.

Dr. Don Fuchs, Vice Chair of the CCDS Board of Directors, challenged participants to hold up the commonalities that each group brings to the table and to begin to share opportunities that each project provides. Laurie Beachel, Executive Director of CCD stressed the need for organisations to co-ordinate efforts in order to avoid working against each other.

At present there are five international initiatives at different stages. The Canadian International Development Agency has funded two projects in Russia and Ukraine that are being co-ordinated by CCDS and the U of M. The Estonian task force began meeting in 1996 and has established contacts with a university and rehabilitation centre in Estonia. A request from Zimbabwe for curriculum development and training is being responded to by the Zimbabwe task force. The fifth area is the Canada/Mexico/USA Student Mobility Exchange Program, in which two universities from each of the countries accept exchange students (see CCDS Bulletin volume 3 number 2).

A group of people sitting around a table
Symposium Participants

Commenting on the involvement of the Family Services Department, Province of Manitoba, Jim Derksen emphasised the benefit of “observing other cultures and the way they operate at the government level.” Henry Cullihall, CCDS, added that much credit needs to be given to the volunteers who make up the task forces and committees. Because of their efforts and perseverance, the projects move forward to implementation and completion.

As a result of the afternoon discussions, it was agreed to form an international committee made up of representatives from each task force and project group to better facilitate communication and efficiency of work.

A man talking
Laurie Beachell

Another man talking
Henry Cullihall

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CCDS Membership Information can be found on our Website…

http://www.escape.ca/~ccds/

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A Unique Library
The Disability Information Network

What does the Disability Information Network (DIN) conjure up in your mind? A network means connections. It would follow then that the Disability Information Network means connections to information on disability issues. We all recognise the fact that we don’t suffer from a lack of information and the Internet has made it easier to access that information. Or has it? Sorting through the maze found on the Web can be frustrating unless you have a guide. The CCDS Disability Information Network is your guide through the wealth of material on disability issues available on the World Wide Web.

According to George Hamilton, new co-ordinator of the DIN at CCDS, the potential for this unique “virtual” library is practically limitless. Partnerships are being developed with universities and technical schools across Canada and the world. These partnerships form a disability information resource pool which is and can be made available to researchers across a broad spectrum.

A man smiling
George Hamilton

Research assistance in the area of Disability Issues on the World Wide Web is being provided by DIN staff. Rate structures for this research assistance are currently be developed. Members of CCDS will receive the benefit of this service at discounted/no charge rates, depending on the number of hours utilised.

The CCDS Library staff is currently taking inventory of existing and potential volumes in the hard copy section, with the view to enhancing the offerings available to researchers. This part of the library is for on-site use by Board members and CCDS members and also researchers working on projects in partnership with CCDS.

Public awareness of disability issues and research will also receive a boost through the placement of books at McNally Robinson Booksellers, a Canadian bookstore which has established a Disability Studies sub-section in the Issues section of its Grant Park Winnipeg store.

The DIN can be found on the CCDS Website at http://www.escape.ca/~ccds/

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Discovering Connections

A Guide to the Fun of Bridging Disability
Differences - By Linda D. Hill
With the Cowichan Valley Independent Living
Resource Centre

Book Review

Discovering Connections was reviewed for CCDS by Nancy Dorries, BSW, a Winnipeg social worker with extensive group leading experience. Here’s her assessment of the book.

The book is progressive in nature with the segments building on each other. It begins by asking ‘where am I at in my view of differentness...what are my personal goals in doing this workbook...what is reasonable to expect?’ Discovering Connections is interactive, saying ‘Here’s what we think, now what do you think.’ It invites participants to keep a journal with exercises that are fun and meant to be done together ‘...with a travelling companion’.

Three points about the exercises in Discovering Connections… A) They are ‘involving’ and include journaling, drawing, sculpting, and going to social events. This requires serious time commitment and certainly won’t be boring. B) They promote relationship building rather than a mere intellectual pontification about disabilities. C) Participants ‘learn by doing’.

Working through Discovering Connections reminded me of a Chinese proverb… ‘Tell me and I’ll forget, show me and I may remember. Involve me and I’ll understand’.

Discovering Connections is available from Building Bridges, Box 156, Duncan, B.C. V9L 3X3

E-mail bridges@island.net or call toll free 888-746-1529.

(Webmaster's note: You can also order it through the CCDS Bookstore)

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Staff Profile
Neil Okumura, CGA

The Canadian Centre on Disability Studies would like to introduce Neil Okumura, CGA. Neil is the new accountant at the Centre, bringing with him experience in both profit and not-for-profit agencies as an employee and as a board member.

Neil is a native of Winnipeg, Manitoba and is married to Irene. They are parents of a son and daughter, Chad and Ciara.

A smiling man with glasses
Neil Okumura

Golfing, curling and baseball rate highly on Neil’s list of extra-curricular activities and rumour has it that his sweeping expertise is not the kitchen variety. Welcome to the Centre, Neil.

Neil assumed his duties at the Centre April 12, 1999.

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Royal Bank works towards hiring targets

Royal Bank of Canada, corporate sponsor of the Canadian Centre on Disability Studies Research Chair, is on the road to meeting its target for the hiring of persons with disabilities. According to Crystal Laborero, Human Resources Advisor for Saskatchewan, Manitoba, Northwestern Ontario and Nunavut District, the goal is that 12.5% of existing employees will be persons with disabilities.

Implementation of this goal includes partnerships with disability organisations, preparatory interviews with potential employees and work placement and experience. Laborero added that job preparation in the classroom setting is also part of the program. Hiring management within Royal Bank will be equipped with measurement tools for tracking purposes.

Research potential for this initiative includes monitoring its effectiveness.

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Editorial

A prime opportunity to become involved at the ground level of the building of an organization was how Human Resources Development Canada viewed the support of the Canadian Centre on Disability Studies. An endowment fund was established with a donation of $1 million which became a major building block of CCDS, a Centre dedicated to the promotion of research and education in disability issues.

Research and education opportunities have come to the Centre quickly. They have been received by the volunteer board and the staff with much enthusiasm. For those involved at the Centre the struggle has not been a lack of research opportunities and challenges. Projects avail themselves locally, nationally and even internationally. The real dilemma is which projects to set aside because there is just not enough time or adequate funding to do them justice.

Creativity is alive and well at the Centre. It is not always necessary to spend money to further the work of a project. In-kind donations have been of great assistance in furthering the goals of the Centre. An excellent example of this is the story found on page five of this issue of the Bulletin. That story tells of a Disability Studies section being established at a Canadian bookstore. George Hamilton is hard at work developing the Centre library. He observed that a good way of expanding the availability of materials was to see if a local outlet would be open to promoting writings dealing with disability issues. The response was positive.

Opportunities to become involved in the development of the Centre range from volunteering as a board or committee member and making in-kind donations to becoming a Founding Member. More information on how you can become involved in this important work can be obtained by calling the Centre or visiting the Website. You’ll find it at http://www.escape.ca/~ccds/

R.N.

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New Date Set for CCDS
Annual General Meeting

Thursday, October 28, 1999 7 – 9:30 PM

(click here for AGM details)

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Employment Opportunity

EDUCATION DIRECTOR

Canadian Centre on Disability Studies
Salary Range: $42,000 - $50,000
(depending on qualifications and experience)

MISSION

The Canadian Centre on Disability Studies (CCDS) is a consumer-directed, university-affiliated centre involved in research and education on disability issues. CCDS is committed to fostering a spirit of collaboration between the disability and academic communities and other interested parties on initiatives of mutual interest and benefit nationally and internationally.

THE POSITION

The Education Director is a 3 year renewable term position. It is expected that it will be a joint appointment with the University and CCDS.

QUALIFICATIONS:

  • Ph.D (or equivalent experience) with a commitment to consumer participation in disability studies
  • thorough understanding of the social model of disability and the disability movement
  • must have at least 5 year experience in teaching and developing course material
  • administration and proposal writing skills are an asset
  • ability to communicate in both English and French would be an asset
  • qualified individuals with a disability are encouraged to apply

RESPONSIBILITIES:

The successful candidate will:

  • be responsible for coordinating and providing leadership for the education activities of CCDS and work in partnership with the University
  • to continue to develop, implement, and deliver the inter-disciplinary Masters Program on disability studies
  • to assist in building a sustainable - resource base for CCDS educational activities
  • to work closely with the Education Committee in exploring short and long term education activities in the community

APPLICATION PROCESS:

Applications, including teaching experience, knowledge of the disability community and the names of 3 references should be sent prior to September 15, 1999 to:

Dr. Henry Enns
Executive Director
Canadian Centre on Disability Studies
2404-7 Evergreen Place
Winnipeg, Manitoba R3L 2T3
Fax: 204-284-5343
E-mail: ccds@disabilitystudies.ca

All applicants are thanked for their interest. Only those applicants accepted for interview will be contacted. NO PHONE CALLS PLEASE!

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Events Calendar

Canadian Centre on Disability Studies

ANNUAL GENERAL MEETING

Thursday, October 28, 1999 7:00 – 9:30 PM
At the Norwood Hotel, Winnipeg, MB
Registration is at 6:30 PM with refreshments following the meeting

The focus is on Research

Come and see Project Displays

(For more information see the front page story of this issue of the Bulletin)

* * *

Independent Living
Resource Centre

15th Annual General Meeting

Thursday, September 9, 1999
Norwood Hotel
112 Marion Street, Winnipeg MB

Registration 6:30 PM
General Meeting 7:00 PM sharp
Refreshments 9:00 – 10:00 PM

* * *

Transitions Through Life:
The 12th International Conference
for Learning Disabilities and
Attention Deficit Hyperactivity Disorders

Sponsored by the Learning Disabilities Associations
Of Canada and Manitoba

September 30 – October 2, 1999
Crowne Plaza Hotel
Winnipeg, Manitoba

* * *

UNIVERSAL DESIGN IN THE CITY
beyond 2000

Presented by the
Canadian Institute for Barrier Free Design
And the
Faculty of Architecture – University of Manitoba

September 30 – October 2, 1999
Sheraton Winnipeg
161 Donald Street, Winnipeg MB

* * *

Technology and Persons
With Disabilities
15th Annual International Conference

Sponsored by the Centre on Disabilities
California State University, Northridge (CSUN)

In Los Angeles. CA March 20-25, 2000

Keynote speaker: Tom Whittaker, the first person with a disability to climb Mount Everest

Canadian Centre on Disability Studies
56 The Promenade
Winnipeg, Manitoba, CANADA R3B 3H9
Telephone: (204) 287-8411 Fax: (204) 284-5343
TTY: (204) 475-6223 Email: ccds@disabilitystudies.ca

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