CANADIAN CENTRE
ON DISABILITY STUDIES

AGING AND DISABILITY
From Research and Knowledge to Better Practice:
Building Strategies and Partnerships for Livable
Communities that are Inclusive of Seniors with Disabilities
Discussion Paper
January 2009
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Disclaimer
"This project is
partially funded by the Government of Canada's Social Development Partnerships
Program. The opinions and interpretations in this publication are those of the
author and do not necessarily reflect those of the Government of Canada."
TABLE OF CONTENTS
I. Introduction................................................................................................................................ 1
II. Background................................................................................................................................ 2
A. Aging and Disability: What the statistics tell us............................................................. 2
B. Common Issues between Seniors and People with Disabilities................................... 3
i. Home Support Services.......................................................................................... 3
ii. Accessibility............................................................................................................. 3
iii. Stigma Associated with Aging and Disability........................................................... 4
iv. Impact on Individuals and Families.......................................................................... 4
v. Research and Policy............................................................................................... 4
C. Seniors and Disability Lens........................................................................................... 5
D. Recommendations from Previous CCDS Research.................................................... 8
III. Seniors with Disabilities – Current Concepts, Approaches and Tools................................... 10
A. Active Ageing – A World Health Organization Policy Framework............................... 10
B. Strategy for Positive Aging in Nova Scotia.................................................................. 11
C. Aging Well in British Columbia.................................................................................... 11
D. Measuring Up – British Columbia ............................................................................... 12
E. Global Age Friendly Cities Project – World Health Organization................................ 12
F. Age-Friendly Rural and Remote Communities – A Guide........................................... 13
G. Elder Friendly............................................................................................................... 13
H. Mentally Healthy Community....................................................................................... 14
IV. Model for Livable and Inclusive Communities for Seniors with Disabilities............................. 14
A. Definitions.................................................................................................................... 15
B. Principles..................................................................................................................... 15
C. Elements...................................................................................................................... 16
D. Indicators..................................................................................................................... 18
E. Process to Implement Evaluation................................................................................ 19
F. Planning Process........................................................................................................ 19
V. Project Goal, Objectives, Activities and Time Frame.............................................................. 21
VI. Project Methodology................................................................................................................ 22
A. Project Governance..................................................................................................... 22
B. Community Selection.................................................................................................. 22
C. Provincial Project Partners.......................................................................................... 22
D. Regional Team Leaders.............................................................................................. 23
E. Community Working Groups....................................................................................... 23
VII. References.............................................................................................................................. 24
I. Introduction
Canada’s population is aging, and as a result, the numbers of individuals experiencing a form of disability is also increasing. Disability in this sense is defined as “physical, mental, intellectual, or sensory impairments which in interaction with various barriers may hinder full and effective participation in society on an equal basis with others” (United Nations, 2006). Seniors, or individuals over the age of 65, by their sheer numbers, are gradually becoming a more significant component of Canadian society, and it is incumbent upon the government and non-government sectors to ensure that communities are inclusive and livable from the point of view of seniors.
The concept that seniors with disabilities
should be included and fully participate in the community is based on a social
model of disability which takes the view that disability is a
consequence of environmental, social and attitudinal barriers that prevent
people with impairments from full participation in society. In this case, the responsibility lies with
society to change in order to accommodate the individual as opposed to the
other way around. For example, if an
individual who uses a wheelchair is registered for a recreational program, then
it is up to the program to ensure that the building is accessible. Full participation in society means that
people with disabilities have the same rights as everyone else; are able to
make informed choices; pursue personal goals; and, are seen as equal. Using the social model disability as the basis,
the goal of this project is to examine how the community environment can become
more conducive to full participation of seniors with disabilities by placing
the onus on the community partners, with participation from seniors, to
evaluate their respective communities and develop a plan of action.
There are currently several projects initiated by government and non-government organizations examining issues related to aging or disabilities, but no initiatives bring these sectors together. The intent of this project is to build upon previous research on aging and disability conducted by the Canadian Centre on Disability Studies (CCDS) by developing an evaluation model to assist communities to measure key elements in the community to determine the degree to which the community is livable and inclusive of seniors with disabilities. In addition, the project assists communities to address the results of the evaluation by engaging in a process to develop a community action plan. Case studies conducted by external consultants will show case best practice in two key areas: visitable housing and transportation.
The CCDS Project Team developed a model for Livable and Inclusive Communities including an evaluation tool and process to be tested in three Canadian provinces within two communities, one rural and one urban, in each province. The pilot sites in which the model will be implemented are: Fort St. John, British Columbia; 100 Mile House, British Columbia; Rossburn, Manitoba; Selkirk, Manitoba; Waterloo, Ontario; and, Woolwich, Ontario.
This document is meant to provide information regarding the issue and challenges facing seniors with disabilities which substantiates the need to address these issues at the community level. A comprehensive review of current initiatives in the areas of aging and disabilities was conducted and serves to demonstrate the overlap between the two sectors and to highlight the required areas in a combined evaluation model. The definitions, principles, and elements of livable and inclusive communities for seniors with disabilities was the result of lengthy research and analysis, and provide the basis for the contents of the evaluation model to be tested in each of the six pilot sites.
II. Background
A. Aging and
Disability – What the statistics tell us
Recent studies show that Canada’s population is aging. It is estimated that in 2001 there were 3.92 million Canadians age 65 and over. It is anticipated that as the baby boomer generation (born between 1946 and 1965) ages, the number of seniors is expected to reach 6.7 million in 2021 and 9.2 million in 2041 (nearly one in four Canadians). Seniors (age 65 and over) are the fastest growing population group in Canada overall, with the most notable increase occurring among the oldest Canadians. In 2001, more than 430,000 Canadians were age 85 and over and this age group is expected to increase to 1.6 million individuals by 2041 or 4% of the overall population. (Health Canada, 2002)
There is evidence to show that as Canada’s population ages, the disability rate increases, demonstrating a direct relationship between the two. The Participation and Activity Limitation Survey (PALS) 2006 conducted by Statistics Canada was designed to collect information on adults and children who have a disability. The survey defines disability as self-reported limitations in everyday activities due to a physical or psychological condition or to a health condition. The data revealed that among children age 0 to 14, 3.7% reported a disability, with the rate increasing to 11.5% among individual aged 15 to 64, and further increasing to 43.4% among persons aged 65 and over. Furthermore, more than half (56.3%) of persons aged 75 and over reported having an activity limitation. (Statistics Canada, 2007) However an aging population does not account entirely for the increasing rates of disability. Other factors such as changes in the perceptions of Canadians towards their limitations and an increased willingness to report them all contribute to the increase disability rates.
Women reported slightly higher rates of disability than men across most age groups, including seniors. Differences in the rates began to show at age 25 when rates of disability are slightly higher for women then men, and this trend continues into the senior age groups where approximately 54% of men and 57.8% of women over the age of 75 experienced activity limitations. (Statistics Canada, 2007)
Based on the connection made between the seniors population, gender and higher rates of disability, we know that a province’s demographic profile does have an impact on the disability rate for that province. The PALS survey results showed that Quebec had the lowest disability rate at 10.4% and Nova Scotia, a province with one of the higher percentages of seniors, had the highest disability rate at 20.0%. Ontario, Manitoba, and British Columbia, the three provinces that are the focus of this project, have very similar rates of disability at 15.5%, 15.7% and 16.0% respectively. (Statistics Canada, 2007)
The primary causes of limitations in activity sited by individuals age 15 years and over were pain, mobility restrictions, and agility problems. Approximately 11% of the total population age 15 and over reported one of these limitations, and 70% of these same individuals who reported one of these three disabilities were also affected by the other two. The rates of disability associated with pain, mobility and agility increase with age along with difficulties hearing and seeing. For example, less than 2% of individuals between the ages of 15 and 24 reported in the PALS survey that they experienced challenges with mobility; however 44% of people age 75 and over were affected. (Statistics Canada, 2007) Moreover, the causes of disability change as a person ages and the degree to which the person’s activities are restricted becomes more severe.
B. Common
Issues between Seniors and People with Disabilities
Despite the evidence showing the increasing numbers of senior individuals experiencing disability, the senior and disability sectors have historically been addressed separately in both the health and social service and policy realms. As a result, barriers have been created to receive necessary supports and services needed to attain quality of life. The common services used by seniors and people with disability calls for combined approaches to service delivery and policy development to ensure that seniors with disabilities can fully participate in the community.
i. Home Support Services
Home care and home support related programs are an essential resource for any individual whose daily functioning is compromised. The Council of Canadians with Disabilities (Krogh and Ennis, 2005) undertook a national study of home care policies and supports across Canada. The value of home care and support programs was emphasized by consumers across Canada when they described the importance of good home support as a key contributor to health and quality of life, assisting individuals to reach their human potential, attain life goals and exercise full citizenship. Good quality home support for many was characterized by consumer control regarding caregiver, schedule, location and type of service. Well-trained staff who valued consumer expertise and respectful relationships was also described as essential components of quality home support. (Krogh and Ennis, 2005)
However, the reality is that programs available to persons with disabilities and seniors differ in terms the range of support options available. As well, the eligibility criteria for home support services differ, with some excluding persons with disability and others excluding seniors, yet the service is required for both groups of individuals. As people with disability age, the transition from the disability services to the senior services can be challenging with the former advocating for more consumer control practices and the latter focused on a more paternal approach to service provision. This begs the question of what losses are experienced by people with disability as they transition to senior related services. In light of this, it is important to examine the possibility of integrating models of home care and support from the disability and aging fields. This enables the provision of a fuller range of supports and services to maximize independence for those with disabilities who are growing older and the senior population by emphasizing the strengths from both sets of models. Also, coordinated and integrated services result in cost efficiencies. The integration of service model requires changes in policy in the health and social service sectors to support the integration of home support services.
ii. Accessibility
The built environment can act as a barrier
or a catalyst to the participation of individuals aging with disabilities as
well as those aging into disabilities.
The built environment refers to items such as housing, parks, recreation facilities, and public transportation
systems. Too often the built environment
is not designed to facilitate access of individuals who have restricted
mobility, such as the presence of stairs into houses, an absence of ramps into
buildings, a lack of clear walkways, and a lack of mobility friendly
transportation options. When buildings
are designed with accessibility in mind, the net effect is that individuals
with disabilities become more independent, relying less on external supports,
and are more likely to fully participate in the social, economic, and
environmental aspects of the community.
iii.
Stigma Associated with
Aging and Disability
Society attributes and assigns different labels to the notions of aging and disability, also known as societal stigma. For example, there is a widespread assumption the seniors with disabilities cannot be productive in the paid employment sector and are incapable of living independently. Many people who are growing older fear the prospect of the onset of disability and experiencing the stigma that surrounds disability and how this might impact their lives. Many seniors are reluctant to accept that they have a disability for fear of the stigma, even though acknowledging the disability is necessary to access needed supports. Variables such as culture, religion, language, family role, and gender all have an impact on whether a person will self-identify as a senior with disabilities. Some people may be reluctant to identify themselves as a senior with disabilities as it carries with it a “double stigma”; the negative connotations society associates with aging and disability. In some cases, seniors may refuse to accept the “disability” label, but will take on the impairment itself (recognizing for example, a loss of hearing but not accepting to be qualified as a person with a disability).
How terminology such as “disability” is defined by a particular group is affected by the stigma surrounding disability and aging. Many organizations for seniors refrain from using terms such as disability and discuss “healthy aging” instead. Within the disability movement, however, the term “disability” is not defined as an illness but rather as a state in which a person can live a full productive life. For example, some seniors believe that disability aids and devices such as wheelchairs are signs of frailty. In contrast, the disability community feels that use of these types of aids and devices can lead to greater pride and independence. A community that is considered livable and inclusive of seniors with disabilities would not embrace negative perceptions but rather would look to the attitudinal, environmental and social changes needed to ensure that they can participate fully in the community.
iv. Impact on Individuals and Families
The impact of the increasing number of people aging with disabilities and those aging into disability is significant for individuals and families. For those individuals whose disabilities are worsening due to health conditions or whose physical or cognitive functioning is decreasing, there is an increased need for support from family, friends and other informal caregivers as well as the formal service system. For family members who offer much of the informal caregiving, this results in increased family stress. Previous research conducted by CCDS on the experiences of informal caregivers with disabilities showed that supports to caregivers with disabilities as well as care receivers were inadequate. The findings included: insufficient respite care (particularly in rural areas); insufficient home supports to both caregivers and care receivers; insufficient compensation to family caregivers; lack of accessible, affordable and flexible transportation; inaccessibility of the environment; and lack of sufficient affordable, accessible housing. In addition, non-profit organizations and agencies which support caregivers are often inadequately funded resulting in a decreased ability to provide services. As more people age, the stresses and strains on individuals, caregivers and the service system will increase unless communities take steps to engage seniors with disabilities and other key partners in developing ways that the community can be responsive to their needs.
v. Research and Policy
Within the research and policy realm, “disability” and “aging” are often treated as two distinct areas. As this section has demonstrated, there are common issues that converge for the two groups which should be integrated at the policy level and at the service delivery level. There is a need to develop solutions that will serve to meet the needs of persons with disabilities, seniors, and seniors with disabilities. For example, universal design is applicable to both the aging and disability fields, and policies can be developed as a starting point for communities to address environmental aspects of livable and inclusive communities for seniors with disabilities.
C. Seniors and
Disability Lens
Within the context of social policy and program analysis, the term “lens” refers to a tool used to assess the degree to which a policy, initiative or program is consistent with the needs of the population being studied or examined. A lens is a framework which includes a series of questions that are taken into account in the development, delivery and evaluation of policies, programs and services pertaining to a specific group. Separate lenses have been developed as they relate specifically to seniors, seniors mental health, disabilities, and inclusion; however these lenses have not been combined to assess common policies, programs, and services for seniors with disabilities. Examples of common issues include: the need for a range of affordable, accessible housing; affordable, accessible and flexible transportation; and, a range of home support services. For this project, it is important that a combined seniors and disability lens is developed in order to accurately measure if a community is livable and inclusive of seniors with disabilities. In this section, the components of separate disability and seniors lenses are described, and the key elements of a combined lens are proposed.
Disability Lens
Provincial governments in British Columbia and Alberta have developed disability lenses while Manitoba is in the midst of developing its disability lens. Each lens is designed to assess the degree to which people with disabilities are included in policies, programs and services, although the elements of the various lenses differ slightly. For example, the Alberta Disability Lens (Premier’s Council on the Status of Persons with Disabilities, 2002) is divided into three sections of questions: 1) identifying the degree of inclusiveness reflected in policies or programs; 2) addressing the homogeneity of the interests and viewpoints of children, women, and seniors with disabilities; and, 3) addressing employment, education, housing, transportation, and recreation/active living of persons with disabilities. The responses to the questions are rated with respect to the degree of inclusiveness for persons with disabilities and each rating leads to a strategy to improve or maintain the rating of the initiative.
Alternatively, the disability
lens developed by the British Columbia government (Government of British
Columbia, 2002) reflects broad principles to ensure that legislation, policy,
programs and services are inclusive of persons with disabilities. The seven primary impact areas in the British
Columbia Disability Lens are:
·
Consultation and
data collection;
·
Accessibility and
appropriate accommodation;
·
Systemic,
indirect discrimination and legal obligations;
·
Economic status,
education, training and employment;
·
Communication;
·
Safety and
protection from victimization; and
·
Health and
well-being.
The Government of Saskatchewan released a Disability and Inclusion Framework in June 2007. Similar to a disability lens, the Framework contains values, goals and principles however there is a focus on the disability support service system and the impact that a disability has on a person’s ability to achieve social and economic inclusion. The Framework is intended to serve as a guide to the development of policy, programs and services that will better support and include individuals with disabilities (Government of Saskatchewan, 2007).
Seniors Lens
The National Framework on Aging (2002) created by Health Canada and the Seniors Mental Health Policy Lens (2004) developed by the British Columbia Psychogeriatric Association are examples of a seniors lens containing questions against which policies, programs and services can be measured. The National Framework on Aging is based on a set of principles that include dignity, independence, participation, fairness and security. The questions are designed to assess the presence or absence of these principles in policies, programs and services related to seniors. Examples include:
·
Does the
policy/program address the diverse needs, circumstances, and aspirations of
various sub-groups within the seniors population (e.g. age, gender, family
status, geographic location, Aboriginal status, official language minorities
and ethno-cultural minorities, income status, health status, etc.)?
·
Is the
policy/program inclusive in nature, or does it separate and isolate seniors
from the rest of society?
·
Does the policy
or program take into account the full costs and benefits of supporting the
aspirations of society, including those of seniors? What is the cost or
consequence of not responding?
In the article “Promoting Seniors Well Being: A Policy Lens”, MacCourt (2004) discusses a Seniors Mental Health Policy Lens developed by the British Columbia Psychogeriatric Health Association. This lens is an analytical tool to identify (or predict) direct or indirect negative repercussions of policies, programs and services (in place or proposed) on the mental health of all older adults. It was developed as part of a national project, "Psychosocial Approaches to the Mental Health Challenges of Late Life", awarded to the B.C. Psychogeriatric Association by Health Canada, Population Health Fund. The Seniors Mental Health Policy Lens incorporates the perspectives of Canadian seniors about the factors influencing their mental health and reflects the values of older adults.
The lens is composed of a set of ten questions that are: (1) intended to raise user’s awareness about the factors that impact the mental health of older adults; and (2) guide the analyses of policies from a seniors' mental health perspective. The questions are based on the principles of the population health determinants (Health Canada, 2002), mental health promotion (Health Canada, 1998) and healthy aging policy (Marshall, 1994). They draw upon the values and core principles embedded in the "Guidelines for Best Practices in Elderly Mental Health Care" (B.C. Ministry of Health, 2002) and the "National Framework for Aging: A Policy Guide" (Health Canada, 1998). The Mental Health Policy Lens Questions include:
Elements of a Combined Seniors and Disability Lens
Approach
A combined disability and seniors lens can serve as a tool to assist in the development of an evaluation exercise to determine the extent to which a community is livable and inclusive of seniors with disabilities by highlighting the areas to be addressed. By applying a combined disability and seniors lens, the following areas become apparent:
·
Social and
economic participation: Do policies, programs and services for seniors with
disabilities encourage participation in paid or volunteer work within the
community and address inequalities which serve as barriers to such
participation?
·
Community
involvement including civic participation and opportunities to develop
community leadership: Do seniors with disabilities have equal opportunities to
participate on community committees, boards, leadership positions, etc? What barriers exist to hinder this form of
participation?
·
A built
environment that is based on universal design principles and is accessible
using universal design principles and maximizing the use of public spaces and facilities
to meet a variety of needs. Are
environments based on universal design principals and encourage optimum use of
public spaces?
·
Social and
physical environments have a direct correlation to overall health, well-being
and quality of life of current and future generations: Are health and well-being programs and
services available to seniors with disabilities?
·
Affordable and
accessible housing with a range of support services included where appropriate
and eligibility criteria that is flexible and inclusive of the needs of both
populations: Do policies, programs and
services allow for a range of affordable and accessible housing choices with
program eligibility criteria which are flexible to address varying situations
experienced by people with disabilities who are aging and those aging into
disability?
·
Affordable,
accessible and flexible transportation options are available: Do policies,
programs and services support a range of affordable and accessible
transportation choices which are flexible to address varying situations
experienced by people with disabilities who are aging and those aging into
disability?
·
A range of home
support options and support to caregivers is available to respond to a variety
of situations and with eligibility criteria which is flexible: Do policies, programs and services offer a
range of affordable and accessible home support options with program
eligibility criteria which are flexible to address varying situations
experienced by people with disabilities who are aging and those aging into
disability?
·
Cultural and
spiritual programs are accessible to seniors with disabilities: Are church
activities, cultural events such as theatre, concerts, etc. held in locations
that are accessible to seniors with disabilities? Do programs take into account the cultural
diversity of the population?
D. Recommendations from Previous CCDS Research
Between March 2007 and March 2008, the Canadian Centre on Disability Studies conducted a project entitled “Development of a Comprehensive Knowledge-based Framework to Address the Needs of Canadians with Long-Term Disabilities who are Aging” funded by the Office for Disability Issues, HRSDC. The purpose of the project was to examine programs, policies, gaps and best practices in British Columbia, Manitoba and Nova Scotia in three key areas as they relate to people aging with a long-term disability: home support/ caregiving; transportation; and housing.
Roundtable discussions were held in each of the three provinces to identify the priority areas for consumers with long-term disabilities who are aging, service providers and policy makers in the fields of aging and disability. The series of roundtable discussions provided the research team with a snapshot of the current status with respect to policy, services and programs in the areas of seniors and disability and recommendations for next steps. This research has provided the impetus and lays the foundation for the current project’s intent to evaluate in more detail the elements of livable and inclusive communities for seniors with disabilities.
The results of the roundtable discussion revealed that:
Ø Seniors and people with
disabilities fear that they will lose their independence, lose access to
appropriate transportation, housing and support services, and eventually
require institutional care
Ø Aging with a disability is
perceived as a “transition to less”
Ø Due to the growing population of seniors and people with
disabilities, the current public system is not equipped to meet the service
demands
Ø There are many good practices occurring across Canada; however the
project findings highlighted where major gaps exist in relation to seniors and
disability fields.
The recommendations stemming from the roundtable discussions in Manitoba, Nova Scotia and British Columbia are summarized as follows:
III. Seniors
with Disabilities – Current Concepts, Approaches and
Tools
There
have been many initiatives and projects in Canada and elsewhere with a focus on
examining inclusion and participation of seniors and persons with disabilities
in the community with the common goal of improving their quality of life. There are common elements examined across
these initiatives; however no project or initiative to date has specifically
studied how communities can facilitate the inclusion of seniors with
disabilities and promote intersectoral collaboration and learning.
In order
to better understand the current concepts, approaches and tools used in the
field of community development with respect to inclusion and participation, and
to begin to link the current initiatives with the notion of inclusion of seniors
with disabilities, a summary of some of the key initiatives is outlined
below.
The WHO policy framework on active aging defines active ageing as “optimizing opportunities for health, participation and security in order to enhance quality of life as people age” and is grounded in the United Nations’ principles of participation, dignity, care, independence and self-fulfillment. Active ageing is the process of optimizing opportunities for health participation and security in order to enhance quality of life as people age. It allows people to realize their potential for physical, social, and mental well being throughout the life course and to participate in society according to their needs, desires and capacities, while providing them with adequate protection, security and care when they require assistance. The word “active” refers to continuing participation in social, economic, cultural, spiritual and civic affairs, not just the ability to be physically active or to participate in the labour force.
According to the framework, active ageing is dependent upon a number of influences or “determinants” on health and they are important in the development of policies and programs directed towards individuals that are ageing. The determinants of active ageing are:
Source: World Health Organization (2002). Active
Ageing: A Policy Framework
Nova Scotia’s positive aging strategy advances the idea that aging is a
lifelong process, whereby positive attitudes toward aging can encourage the
ongoing participation of seniors in the community. Positive aging emphasizes that aging is both
a personal and a societal issue. It
focuses on promoting individual responsibility, such as improving lifestyle
choices that influence positive aging, while also addressing the broader role
that families, communities and the province play in ensuring seniors receive
the supports they need to age positively.
Principles include dignity, fairness,
participation, respect, safety, self-determination, self-fulfillment and
security that are promoted to reach the following goals:
· Celebrating seniors (eliminating ageism, valuing seniors’ contributions to society)
· Financial security (adequate and accessible public income support programs, available financial planning resources)
· Health and well being (health promotion, disease and injury prevention, continuum of care)
· Maximizing independence (available in-home services, support for family caregivers, adequate supply of paid care providers)
· Available housing options (affordable housing options and accessible housing design)
· Accessible transportation (affordable and accessible, responsive to rural and urban needs, pedestrian-friendly community)
· Respecting diversity (policies and programs that take into account cultural diversity, gender equity and social inclusion)
· Employment and life transitions (age-friendly and healthy workplaces, volunteer and education opportunities)
Source: Province of Nova Scotia (2005). Strategy for Positive Aging in Nova Scotia.
The Premier’s Council on Aging and Seniors’
Issues in British Columbia envisions a society where everyone benefits from the
wealth of talent and experience of older adults; where older people are
actively involved, integrated rather than isolated, and supported in their
desire to remain engaged with their communities; and, assisted when poor
health, lack of income or other barriers stand in the way of a good quality of
life. Elements of the community that are
explored to create this vision include:
Source: British Columbia Premier’s Council on Aging and Seniors Issues
(2006). Aging Well in British Columbia
The "Measuring Up" initiative was designed to assist municipalities and communities in British Columbia to assess the degree to which their citizens with disabilities are active participants in community life. Active participation has two dimensions: accessibility and inclusion. Accessibility means recognizing, reducing and removing any physical or structural barriers that prevent individuals with disabilities from being present in the community. Inclusion is the degree to which the contributions of all citizens are welcomed and enabled.
The Measuring Up framework is built on elements which enable people with disabilities to participate in their communities in a meaningful way. The Measuring Up guide has four main elements:
Source: City
of Vancouver (2006). Measuring up: Communities of Inclusion, Workbook, Tools
and References.
The World Health Organization defines an
“age-friendly” community as one in which the policies, services,
settings and structures support and enable people to age actively by:
The elements in the community that are the focus with respect to the degree to which they meet the definition of an “age-friendly” community include:
· Transportation (available, affordable, reliable, accessible)
· Housing (affordable, essential services, accessible design, close to services, range)
· Social Participation (accessible activities, affordable, range of activities, awareness of activities, integration with others)
· Respect and social inclusion (consultation, anti-stigma, involvement)
· Civic participation and employment (volunteering, flexible employment, training, civic participation)
· Communication and information (widespread, easily accessible, multiple formats)
· Community support and health services (accessible, range of services, home care, residential facilities)
·
Outdoor spaces and buildings
(access to green space, barrier-free, safe, amenities)
Source: World Health Organization (2007). Global Age-Friendly Cities: A Guide.
F.
Age-Friendly
Rural and Remote Communities: A Guide
The Rural and Remote Communities initiative is Canada’s focus as
it relates to the World Health Organization’s Global Age Friendly Cities
Project. The rationale for the focus on
rural and remote communities is that they face unique social and environmental
challenges when compared with urban centres, and these challenges have a
negative impact on an individual’s health.
The first phase of the initiative included ten communities from eight
jurisdictions. The Guide is based on the
same eight elements described in the WHO document above. The Guide includes a check-list related to
the elements to assist in the community evaluation process.
Source: Federal/Provincial/Territorial Ministers Responsible for
Seniors (2007). Age-Friendly Rural and Remote Communities: A Guide.
The term “Elder Friendly” refers
to a community’s assets that have been shown to improve the lives of
seniors. The vision of an “Elder
Friendly” community includes:
·
Older adults
remain engaged in community life longer and as a result contribute to community
life longer;
·
Older adults are
healthier, reducing the demands on and costs of local health care;
·
The community
attracts residents of all ages who contribute to community vitality;
·
The community
attracts resources (i.e. businesses, infrastructure) to meet the needs of its
older adult members;
·
Community capacity
exists to develop leadership, relationships and knowledge that is useful in
creating community change in other areas
The Elder Friendly Community
Assessment Tool includes ten categories of assets that contribute to elder
friendly communities:
·
Walkability (paved,
barrier-free, well-lit, well maintained and safe walkways)
·
Supportive community
systems (process to evaluate progress, access to technology, emergency
services, and information)
·
Access to health care
(health promotion for seniors, quality medical care, support for caregivers)
·
Safety and security
(measures public and personal safety)
·
Available and affordable
housing (range of housing options, affordable and flexible housing)
·
Modified housing (access to
home modification and home maintenance services at a low cost)
·
Transportation (affordable,
available and reliable transportation options for local and out-of-town travel)
·
Commerce (services in close
proximity to housing, accessible services, employment opportunities for
seniors)
·
Enrichment (accessible and
available green spaces, recreation activities, opportunities for education and
volunteering
·
Inclusion (needs of seniors
are acknowledged and valued, seniors participate on community boards)
Source: Michigan
Department of Community Health (2007). Michigan Community for a Lifetime, Elder
Friendly Community Recognition Program, History and Project Development Report.
A mentally healthy community is a place where people report low levels
of depression, suicidal thoughts, substance abuse, violence, discrimination and
stress and high levels of quality of life, work satisfaction, economic
security, social support, self-esteem and well-being. It is a place where people’s interdependence
and mutuality is recognized, protected and valued.
The World Health Organization (WHO) defines mental health as “a state of
well-being in which the individual realizes his or her own abilities, can cope
with the normal stresses of life, can work productively and fruitfully, and is
able to make a contribution to his or her community.” This definition of
mental health is aligned with the values of Canadian Coalition of Seniors
Mental Health (CCSMH) and suitably falls within a framework for a mentally
healthy community for seniors.
The
determinants of health that contribute to the creation of mentally healthy
communities for seniors include:
·
Income and social status (adequate public income
support programs, universal coverage, optional retirement)
·
Social support networks (active leisure programs,
support programs, caregiver support, participation in decision-making)
·
Social environment (anti-stigma campaigns, supportive neighbourhoods)
·
Physical environment (barrier-free, adequate
transportation, home based care, home modification subsidies)
·
Personal health practices and coping skills (inclusion
in public health campaigns, available counseling and support programs)
·
Health services (available assessment services, access
to well funded geriatric/primary health care services)
Source: Canadian Institute for Health Information (2008). Mentally Healthy Communities: A Collection of Papers.
IV. Model
for Livable and Inclusive Communities for Seniors with
Disabilities
The core purpose of this project is to assist communities in evaluating
the elements necessary to ensure that the community is livable and inclusive of
seniors with disabilities, and to facilitate a community planning process to
identify what steps the community can take to achieve this outcome. In order to undergo this evaluation and
planning exercise, it is important that the concepts of livable and inclusive
communities are clearly defined.
A model has been developed by the CCDS Project Team to evaluate the
extent to which the key principles and elements that make up livable and
inclusive communities for seniors with disabilities are present, and a process
to plan and address the gaps revealed in the evaluation. The development of the model stemmed from an
extensive environmental scan of community-based evaluation initiatives in the
disability and seniors sectors; a comprehensive review of the literature, an
analysis of the common principles, elements and indicators comprising existing
tools in the field; and previous research conducted by CCDS on seniors with
disabilities (2007-2008) and caregivers with disabilities (2008).
The result is a model for livable and inclusive communities consisting of concepts that are central to the model as well as processes and tools that are used in the implementation of the model in communities. The concepts include: 1) elements that make up a livable and inclusive community; 2) principles that act as a guide when examining the elements, and 3) processes including one to measure livable and inclusive communities and the other to plan livable and inclusive communities. There are three aspects associated with the implementation of the model including: 1) the evaluation tool that outlines the elements and associated indicators to be measured, the space for data collection results, and identification of the implications of the results; 2) a process to measure the indicators and collect the data; and, 3) a facilitated planning process to transfer the evaluation findings into actionable steps.
The model emphasizes the inter-relationships not only between the principles and the elements, but also between the elements themselves. The general premise of the model is that the principles and elements described can be adapted and applied to different priority populations because the central principles and elements of livable and inclusive communities applies to all citizens of a community. In this case, the principles, elements and indicators have been developed with a focus on the interests of seniors with disabilities.
A. Definitions
The term “livable and inclusive community” is premised on the values:
Livable communities are assessed by the level of quality of life it offers to their citizens, including a place that fosters good schools, housing, public transit, and jobs; takes a sustainable approach to environmental, cultural, and human resources; encourages a broad range of physical, cultural, social, and economic opportunities; and, it takes a context-sensitive approach to planning and development impacts. (Montgomery County Planning Department, 2003)
An “inclusive
community” by definition is one that is open to individuals of all identities
(for example, age, gender, race, religion, sexual orientation,
ability/disability, ethnic origin, family status, etc.), and that these same
individuals are able to actively take part in the community as they feel safe
and empowered to do so; their voices are heard; and, their contributions are
acknowledged and valued by the community. (McMaster University, N.D.) Participatory
planning and decision-making are at the heart of an inclusive community. (Maxwell, G., 2007)
When
these values and definitions are applied to seniors with disabilities, the
result is a community that actively involves and includes seniors with
disabilities and that the businesses, programs, and services that make up a
community are planned and established with the needs of seniors with
disabilities in mind.
B. Principles
The principles are a collection of morally based standards that act as a guide to the measurement of the elements. They are purposely broadly stated so that they can be easily incorporated into the measurement process. The principles have been written to reflect the focus on seniors with disabilities and are as follows:
C.
Elements
Based on a review of the literature, an examination of other initiatives focused on seniors or persons with disabilities, and previous research conducted by CCDS, it was determined that livable and inclusive communities consist of ten common elements. The six principles listed above act as a guide when examining each element and determining the degree to which it reflects livable and inclusive communities. Just as the principles are connected with the elements, each element is inter-connected with another. In other words, if change occurs within one element, than another element is impacted. For example, if accessible homes (element) for seniors with disabilities are built on the outskirts of a community, then reliable transportation (element) needs to be available in order to use necessary support services (element).
The descriptions of the elements with a
focus on seniors with disabilities are as follows:
D.
Indicators
Indicators have been developed for each element to measure the extent to which the element is present in the community being evaluated. The indicators are both quantitative and qualitative in nature and each element’s indicators reflect the six key principles. For example, the indicators for the element of housing are as follows:
|
Element |
Principle |
Indicators |
|
Housing |
Participation |
Ø seniors with
disabilities are required to participate directly in the planning process as
it relates to housing development as well as neighbourhood design. Participation can take place at the
provincial, municipal or community levels.
Policy(s) exists making the participation of seniors in the planning
process mandatory. |
|
|
Community
Connections |
Ø the location
of the housing occupied by seniors with disabilities is within a 5 minute
walk, 10 minute drive by car, or 15-20 minute ride using public
transportation to core amenities. |
|
|
Leadership |
Ø the leadership
of government and non-government organizations in the community formally
acknowledges and addresses the housing needs of seniors with disabilities. Evidence of such leadership would include
strategic planning and community planning processes and subsequent documents
that highlight the different housing options for seniors with disabilities. |
|
|
Sustainability |
Ø the community
conducts pre and post evaluation activities to ensure a balance between the
social, economic and environmental factors in the development of
housing. For example, does the housing
development meet the needs of the community members, is it economically
affordable to build and maintain in the long run, and does it address the
impact on the surrounding natural environment? |
|
|
Universal Design |
Ø policy exists
to guide the planning of new housing construction (private and public) that
ensures basic accessibility (no step entrance, wider doorways, and main floor
bathroom). For existing housing stock,
assistance (i.e. financial and design/construction knowledge) is available to
adapt the home to meet and individual’s needs. |
|
|
Affordability |
Ø percentage of
individuals in the community age 65 and over that spend more than 30% of
their income on housing. The number of
seniors subsidized housing units in the community in proportion to the number
of individuals age 65+ that spend more than 30% of their income on housing. |
E.
Process to Implement Evaluation
The process to implement the evaluation is participatory and multisectoral in nature. The activities of the evaluation, i.e. the measurement of the elements based on the indicators, are conducted by a Community Working Group that consists of members that are representative of the key elements of livable and inclusive communities, such as:
Ø Consumers with lived experience – seniors with disabilities
Ø Local government
Ø Municipal planning office
Ø Health services
Ø Transportation
Ø Housing
Ø Universal design
Ø Recreation
Ø Environment
The Community Working Group is sanctioned by an external organization, or project partner, to carry out the activities of the evaluation. More importantly, a mechanism exists whereby the results of the evaluation can be disseminated for the purpose of influencing the policy, program and service structures in the community.
The Community Working Group is led by a Regional Team Leader that coordinates the Group’s activities through meetings which take place every 2-3 weeks. The Group’s primary activity is to implement the evaluation tool. Each Community Working Group receives on-site training on the use of the tool. Once the training is completed, the Regional Team Leader assigns each element and the corresponding indicators to the individual Working Group member whose knowledge matches the element. Each Working Group member is responsible for collecting the information related to the indicators for that element and reporting the findings to the Group at the scheduled meetings. If the required expertise is not available among the existing Working Group members than individuals or other sources of knowledge external to the Working Group may be sought. Examples of external sources of knowledge are policy developers at the municipal or provincial government levels and housing developers. The Regional Team Leaders, with the Working Group members, enter the information gathered for the indicators on the forms provided as part of the evaluation tool and submit the forms to the Project Team for synthesis and analysis.
F. Planning Process
The planning process is essentially about translating the knowledge gained through the evaluation exercise, such as the absence of policies, into actions. The planning process takes place once the evaluation process is completed and consists of two steps. First, the Community Working Group meets for the purpose of completing a planning tool developed by the Project Team that consists of the evaluation results, the implications of the results on seniors with disabilities, proposed actions to address the results, the identification of the organization/agency/government to be involved in the action, and a timeframe in which the action should take place. The Working Groups receive training on the planning tool prior to the planning process taking place. The completed planning tool is submitted to the Project Team for synthesis and analysis.
Second, the Regional Team leaders will participate in a Think Tank for the purpose of evaluating the effectiveness of the evaluation tool, the evaluation process and the planning process. An additional outcome of the Think Tank is to develop a broader “Blue Print for Action” that incorporates the findings of the community-based evaluation and planning process and identifies potential policy areas at the provincial and national levels that require action.
The figure below is an illustration of the model demonstrating the inter-connectivity between the principles, elements and process.
V.
Project Goal, Objectives, Activities and Time
Frame
The goal of this project is to contribute and facilitate the development of livable and inclusive communities for seniors with disabilities. The objectives and activities of the project reflect the steps taken to achieve the project goal, and are outlined in the table below.
|
Objective |
Activity |
|
1.
To
develop an evaluation model for livable and inclusive communities for seniors
with disabilities. |
1.1 Conduct an environmental scan of existing
tools, initiatives, and research focused on livable communities, inclusive
communities, seniors, and people with disabilities. 1.2 Conduct a review of the literature 1.3 Synthesize the findings of the scan and
literature review 1.4 Analyze the data for common principles
and elements 1.5 Develop the indicators for each element 1.6 Establish the process to implement the
evaluation |
|
2.
To
test the evaluation model |
2.1 Identify the communities to participate
as pilot sites 2.2 Identify and engage with provincial
project partners 2.3 Identify and engage with Regional Team
Leaders 2.4 Form Community Working Groups 2.5 Implement the evaluation tool and process |
|
3.
To
increase the capacity of community members to evaluate their community and
implement a planning process to address the inclusion of seniors with
disabilities into the community. |
3.1 Provide one-day training sessions in each
of the six pilot communities on the use of the evaluation tool and process 3.2 Provide a half-day training session on a
community planning process |
|
4.
To
determine the effectiveness of the evaluation tool and community planning
process developed. |
4.1 Hold a Think Tank and invite project
participants to provide feedback on the evaluation tool developed, and to
share the outcomes of the planning processes initiated in each of the six
communities |
|
5.
To
demonstrate best practice in two key areas related to seniors with
disabilities, namely visitable housing and transportation. |
5.1 Engage with two consultants to conduct
two case studies: 1) visitable housing; and 2) transportation |
The timeframe for the completion of the project activities is as follows:
|
Activity |
Date
of Completion |
|
Development of
Evaluation Model |
April - December
2008 |
|
Training Session
on the Evaluation Tool and Process |
January 2009 |
|
Implementation
of Evaluation Tool and Process |
January –
February 2009 |
|
Training Session
on the Planning Tool and Process |
February 2009 |
|
Community
Planning Process and Tool Completed |
March 2009 |
|
Case Studies
Completed |
March 2009 |
|
Think Tank |
March 2009 |
VI.
Project Methodology
A.
Project Governance
The governance structure of the CCDS Livable and Inclusive Communities for Seniors with Disabilities Project serves to provide a forum for project accountability; project leadership in each of the six chosen communities; involvement of key project partners in each of the three provinces; and participation of individuals on a Community Working Group representing key sectors within each of the communities. The CCDS Project Team is responsible for the development of all evaluation materials, provision of evaluation and planning process training, facilitation of the Think Tank, and creation of reporting documents. The CCDS Project Team consists of:
Dr. Olga Krassioukova-Enns – Project Manager
Christine Ogaranko - Project Lead
Laura Rempel - Project Coordinator
Colleen Watters - Research Assistant
Laurie
Ringaert - Project
Consultant
B.
Community Selection
The evaluation model will be tested in two pilot sites, one rural and one urban, in three provinces for a total of six pilot communities: 100 Mile House and Fort St. John, British Columbia; Rossburn and Selkirk, Manitoba; and Waterloo and Woolwich, Ontario.
The six pilot sites were chosen based on the following criteria:
· One rural community in each province (less the 5000 population)
· One urban community in each province (5000 – 50,000 population)
C.
Provincial Project Partners
The role of the provincial project partners is to work in close collaboration with the CCDS Project Team and act as a link between the Project Team and the initiatives, organizations, and individuals at the community level. The project partners are the recipients of the project funding to be used for the implementation of the project activities within the community and required to submit accounting reports to the CCDS Project Team. The project partners are as follows:
100 Mile House, British Columbia - District of 100 Mile House
Fort St. John, British Columbia - Measuring Up the North Community Liaison and the Fort St. John Association for Community
Living
Rossburn,
Manitoba - Rossburn
Seniors Drop-in Centre
Selkirk,
Manitoba - City
of Selkirk
Waterloo and Woolwich, Ontario - Social Planning Council of Kitchener-Waterloo
D.
Regional Team Leaders
The Regional Team Leaders are responsible for leading the development of the Community Working Groups and providing overall coordination of the Working Group activities as well as liaising with the Project Team. Key responsibilities include:
Ø Facilitating the meetings of the Community Working Groups including arranging meeting space, inviting representatives, and disseminating meeting agendas.
Ø Reporting progress to the CCDS Project Team
Ø Participating in the training for the evaluation, protocol and planning tools (2 sessions)
Ø Overseeing the implementation of the evaluation tool and protocol within the community
Ø Facilitating a planning session with the Working Group based on the results of the evaluation
Ø Providing feedback on the evaluation, protocol and planning tools
Ø Attending a Think Tank in March 2009 to participate in the development of a broader action plan
The Regional Team Leaders representing the six pilot communities are:
100 Mile House, British Columbia - Joanne Doddridge, Planner, District of 100 Mile House and Shelly Somerville, Measuring Up the North Committee Member
Fort St. John, British Columbia - Lori Slater, Measuring Up the North Liaison and Cindy Mohr, Executive Director, Fort St. John, Association of Community Living
Rossburn, Manitoba - MaryAnn Grassinger and Ed Zimmerman, Rossburn Seniors Drop-in Centre
Selkirk, Manitoba - Mayor David Bell, City of Selkirk
Waterloo and Woolwich, Ontario - Trudy Beaulne, Executive Director, Social Planning Council of Kitchener-Waterloo and James Hunsberger, Board Member
E.
Community Working Groups
There is one Community Working Group in each of the six chosen communities with members representing a range of sectors including:
Ø Consumers with lived experience – seniors and individuals with disabilities
Ø Municipal planning office
Ø Regional health and support services (government and non-government)
Ø Transportation (municipal government level)
Ø Housing (public and private)
Ø Universal design (accessible built environment)
Ø Recreation
Ø Environment
The Community Working Groups are responsible for participating in training sessions related to the evaluation tool and planning process associated with the development of a livable and inclusive community for seniors with disabilities. Furthermore, the member of the Working Groups is responsible for carrying out the activities related to the measurement of the key elements and for participating in the community planning process to address the results of the evaluation exercise.
VII.
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Canadian Centre on Disability Studies

Contact:
Canadian Centre on Disability Studies
56 The Promenade
Winnipeg MB R3B 3H9
Tel: 204.287.8411
Fax: 204.284.5343
TTY: 204.475.6223
Email: ccds@disabilitystudies.ca
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